Autism Awareness for Clinical Pharmacy Staff

Supporting autism awareness and practice for pharmacy staff in roles aligned with Tier 2 patient contact

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Autism and pharmacy.
Terminology

Hand underlining phrase 'WORDS HAVE POWER' on blue background

Autism is a lifelong neurodevelopmental difference. In UK clinical and diagnostic contexts the term autism spectrum disorder (ASD) remains in use, but everyday practice increasingly favours autism and autistic over the abbreviation “ASD” or phrases that emphasise “disorder”.

Using respectful, current language when referring to autistic people promotes dignity and inclusivity. Healthcare staff should avoid terms that were acceptable in the past but are now experienced as stigmatising or offensive.

Many autistic people in the UK prefer to be described as “autistic” rather than as someone who “has autism” or “suffers from ASD”. This reflects the view that autism is part of a person’s identity rather than a separate illness.

In practice, use the terminology the person (or their parent/carer) uses. When unsure, terms such as “autistic person” or “person on the autism spectrum” are generally acceptable and current.


Neurodivergent

“Neurodivergent” describes people whose brains function or process information differently from what is typical. It is commonly applied to conditions such as learning disabilities, ADHD, autism, dyslexia or dyspraxia. The term is seen as more neutral and less pathologising than language focused on “deficits” or “disorders”.

Many people also identify as disabled, and “disability” remains important in legal, rights-based and accessibility contexts. “Neurodivergent” does not replace “disability”; the terms are often used together. Because labels can acquire stigma, language will continue to change. For now, many people choose and value words such as “autistic” and “disabled”, so do not assume these are negative.


Learning disability

The UK National Health Service (NHS) defines learning disability as “a reduced intellectual ability and difficulty with everyday activities - for example household tasks, socialising or managing money - which affects someone for their whole life. People with a learning disability tend to take longer to learn and may need support to develop new skills, understand complex information and interact with other people.”

This definition does not include conditions such as dyslexia, where there is difficulty with a specific skill rather than a broader intellectual impairment.

The term "learning disability" is used in the UK; other countries may use terms such as "intellectual disability" or "developmental disability."


Learning difficulty

In the UK, learning disability and learning difficulty are different.

Learning disability is a long-term condition that affects intellectual functioning and the ability to cope independently. It is usually diagnosed in childhood or early adulthood and can affect self-care, communication and social interaction.

Learning difficulty is a broader term covering specific difficulties such as:

  • dyslexia
  • dyspraxia
  • attention deficit hyperactivity disorder (ADHD)
  • or more general difficulties acquiring new knowledge and skills

People with learning difficulties may struggle with reading, writing or mathematics but can have strengths in other areas.

The distinction is that learning disability refers to an impairment in intellectual functioning, while learning difficulty can refer to a range of specific or general learning challenges.


ESN, SEN, SEND, and Special Needs

ESN (Educationally Subnormal), SEN (Special Educational Needs), SEND (Special Educational Needs and Disabilities), and "special needs" have been used historically to describe learning disabilities or differences.

  • ESN was used in the UK for students with significant intellectual disabilities who required extra educational support; the term is now considered outdated and offensive.
  • SEN describes students with a range of learning difficulties or disabilities and remains in use.
  • SEND - Special Educational Needs and Disabilities - is increasingly used in place of SEN.
  • "Special needs" is a general, non-diagnostic term that has been applied to various disabilities or differences.

There has been a shift towards more person-centred and inclusive language.


Living with, or suffering from?

"Suffering from" can suggest a person is defined solely by their condition. Using phrases such as "living with" or describing the condition more neutrally avoids implying that the person's life is dominated by suffering. New terminology should be developed with input from affected individuals and their communities to ensure it is respectful and accurate.


The future

Because terms can become pejorative over time, language will continue to evolve. New labels such as Diverse learners, Learning variability, Cognitive diversity, Learning differences, Diverse cognitive abilities, and Cognitive variance are appearing and may become more common.

Ask Dr. Aiden


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