Dementia Awareness for Residential Care Staff (Level 2)

Person-centred dementia care, communication, unmet need, and safer escalation in adult social care settings

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When distress or behaviour changes happen

Care worker offering a stress ball to an older man

In dementia care, staff often see behaviour changes such as agitation, shouting, pacing, resistance to care, repetitive questioning, wandering, withdrawal, or hitting out. These behaviours can be distressing, but they should not be treated as simple "bad behaviour". They are often a form of communication.

Common reasons for distress

  • Pain or discomfort: arthritis, constipation, pressure damage, infection, or an unmet toileting need may be the cause.
  • Fear or confusion: the person may not understand what is happening or who is approaching them.
  • Rushed or undignified care: personal care, moving and handling, and medicines support can all become frightening if handled poorly.
  • Environment: noise, clutter, glare, unfamiliar spaces, and changes in routine can all increase distress.
  • Loneliness or boredom: under-stimulation can be just as important as over-stimulation.
  • Illness or delirium: sudden or severe changes always need careful review.

How staff should think about behaviour change

Instead of asking only, "How do we stop this behaviour?", staff should ask, "What might this person be trying to tell us?" That shift leads to safer, more respectful care.

Repeated labels such as "aggressive", "challenging", or "non-compliant" can hide important causes. Good teams look for patterns, triggers, health issues, and aspects of the care approach that may be contributing to the distress.

What to do when a person with dementia is distressed

Video: 3m 59s · Creator: Dementia UK. YouTube Standard Licence.

This Dementia UK video features Admiral Nurse Paulette Winchester-Joseph explaining what may be happening when a person with dementia becomes distressed. Changes such as agitation, withdrawal, or becoming uncommunicative are presented as possible signs that the person has an unmet need, so the first step is to look for the cause or source of the distress.

Possible causes include feeling in the wrong place, wanting to leave, pain, thirst, hunger, constipation, changes to routine, hospital appointments, day-centre visits, or family gatherings that feel outside the person’s usual pattern. Prevention focuses on keeping routine as close to normal as possible, helping other people understand the situation, and giving information at the right time rather than too far in advance or at the last minute.

When distress happens, the suggested response is to stay calm, pause before reacting, use a gentle tone of voice, maintain eye contact where appropriate, and draw on what is known about the person. Reassurance might include touch, holding hands, sitting with the person, or offering a drink if these are comforting to them.

The video also acknowledges that calming attempts do not always work. Sometimes repeated efforts can increase distress, so it may be better to acknowledge that the person is upset, give them time and space, and come back after a few minutes. Paulette also notes that these situations can be challenging for carers themselves and signposts Dementia UK’s Admiral Nurse helpline for further support.

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Scenario

A woman living with dementia hits out during personal care on several mornings in a row. One staff member describes her as aggressive. Later, a nurse review identifies constipation, soreness, and anxiety when unfamiliar staff approach too quickly.

What should the team take from this?

 

Behaviour change in dementia is often communication. Staff should look for unmet need, distress, illness, or environmental triggers before reducing the problem to a label.

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