Dementia Awareness for GP Receptionists and Care Navigators

Person-centred first contact, memory support and safe escalation

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Carers, consent and confidentiality

GP reception desk staff speaking with older patients

Carers often provide essential support, but confidentiality and consent still apply. The patient's wishes should remain central wherever possible.

Listen and check authority

You can usually receive information from a carer about missed medication, confusion, safety or appointments. Sharing information back requires consent, recorded proxy access, legal authority or another lawful basis under local policy.

A carer may be distressed or frustrated if confidentiality restricts what you can share. Acknowledge their role and explain the correct route for consent or proxy access.

Patient Online: how online access to GP records can help carers

Video: 2m 34s · Creator: NHS England. YouTube Standard Licence.

This NHS England Patient Online video features Trevor, who has a long-term condition and is also a carer for his partner, Jenny, who has dementia. He describes how online access to his GP record helps him feel more in control and makes interactions with clinicians more collaborative.

He explains that notes written in plain language make the record easier to understand and that access lets him check accuracy, since patients and carers can spot errors. Trevor also describes having proxy access to Jenny's GP record, granted with her permission and confirmed by the practice.

He describes how proxy access helps him manage medication, follow the care plan and involve Jenny by showing her entries, because her memory may be unreliable. The video presents online record access and proxy access as useful when permission, authority and understanding are clear. It emphasises patient involvement, accurate records and practical support for caring responsibilities.

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Keep the patient involved

  • Speak to the patient where possible.
  • Check recorded consent or proxy arrangements.
  • Record carer information and who provided it.
  • Escalate if there are safeguarding or coercion concerns.

Carer involvement can support safe care, but it does not automatically remove confidentiality checks.

When unsure, record the facts and seek advice rather than making informal arrangements that might breach confidentiality or leave the patient unsupported.

Carer contact can help when the patient forgets symptoms or appointments. If family members disagree or request information without authority, escalate to a manager or clinician instead of resolving it at reception.

Carers may provide important observations about changes, risks and missed care. Staff can note this information even when confidentiality rules prevent sharing clinical details back.

Scenario

A daughter asks for all appointment details because her mother has dementia, but there is no proxy access recorded.

What should staff do?

 

Ask Dr. Aiden


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